2019 ends with exciting results from Wave PRECISION-HD2 trial!
Today, December 30, Wave announced the first preliminary results from the their study PRECISION-HD2 . So far the results are very exciting and promising. It’s very encouraging to enter a new […]
Precision HD trial update
The exciting trials Precision HD 1 and 2, continue to enroll participants. Wave Life Sciences expect to share the first results by the end of 2019. In the Huntingtin lowering trials, Wave […]
Roche changes plans – Less lumbar punctures needed in HD trial
Roche announced today, March 21st 2019, that the procedures in the huntingtin lowering trial Generation HD will be changed. Instead of monthly lumbar punctures the participants will only be injected […]
Accelerated evaluation of drug
The European Medicines Agency has acknowledged the huntingtin lowering drug, RG6042 (previously known as IONIS-HTTRx), as a possible therapy that may significantly improve patients’ quality of life and granted Priority […]
Amazing news – drug seems to improve symptoms
Yesterday Ionis Pharmaceutical presented new data from their Huntingtin lowering trial, IONIS-HTTRx. The data demonstrates a relationship between reduction of the disease-causing Huntingtin protein and improved symptoms for people with […]
Update message from the Roche team
On her way to board a flight to Los Angeles Mai-Lise Nguyen, Patient Partnership Director at Roche, sent an update letter to all of us who are impatiently waiting for […]
Wave partners with Takeda – HD research strengthened
The biotechnology company Wave Life Sciences strengthens their efforts in Huntington’s disease. In February they announced their collaboration with Takeda, a Japanese pharmaceutical company with long and solid traditions. The […]
More positive data from the Ionis/Roche trial released today
Today Ionis and Roche have announced more details from the Huntingtin lowering trial. The initial results was released in December last year and today at the CHDI conference in Palm […]
Milano taking HD needs into universal design
On June 29th the the HD Associations AICH Milano and Huntington Onlus opened a very exciting and innovative Exhibition at the famous art Exhibition venue Triennale Design Museum in Milano.  “Second […]
General Assembly Minutes
General Assembly Minutes General Assembly 2025 Find here the minutes form our General Assembly meeting online, 2025 Minutes of the General Assembly