Encouraging results from SKY-0515
SKY-0515: final Phase 1/2 results show promising signs in HD Skyhawk Therapeutics has announced final 15-month results from its Phase 1/2 clinical trial of SKY-0515, an investigational oral treatment for […]
EHA Conference 2027
EHA CONFERENCE IN WARSAW 2027 We are excited to announce that the European Huntington Association will be organising its 6th Biennal Conference in Warsaw, Poland, from October 28th-31st, 2027. Whether […]
HD much more than a movement disorder
Huntington’s disease Much more than a movement disorder When we think about Huntington’s disease, involuntary movements are often the first symptom that comes to mind. But Huntington’s affects much more […]
When a Clinical Trial Ends, Hope Doesn’t
When a Clinical Trial Ends, Hope Doesn’t Understanding Roche’s Decision to Discontinue the Phase II GENERATION HD2 and Phase I POINT-HD —and Why Hope Continues Today, we learned that Roche […]
PRECISE-HD
PRECISE-HD A new step forward in pridopidine research for Huntington’s disease For years, hundreds of people and families have been closely following the development of pridopidine, taking part in clinical […]
Collaboration between industry and patient groups
Collaboration between industry and patient groups During the May Awareness Month this year I have been visiting 3 pharmaceutical companies with upcoming or ongoing trials in HD. It has been […]
The importance of nutrition in HD care
The importance of nutrition in Huntington’s Disease care Changes in eating and nutrition are not just side effects in HD – they are a central part of the disease’s progression. […]
UK regulators positive to evaluate Huntington treatment
Community Update UK regulators positive to evaluate Huntington treatment! UniQure announced today that the company has presented the data from the AMT-130 therapy to the regulators in the UK (MHRA). Some […]
Understanding what happens inside the brain in Huntington’s Disease
Understanding what happens inside the brain in Huntington’s Disease Huntington’s Disease (HD) is a complex neurological condition that evolves over time, affecting movement, cognition, and behaviour. As many of the […]
2026 May Awareness: More Than HD – Be Part of It
More Than HD – Be Part of It A global awareness and engagement campaign for Huntington’s Disease “More Than HD – Be Part of It” The European Huntington Association (EHA) […]