Genetic testing and its implications
Alzbeta Mühlbäck was born in the Slovak Republic, former Czechoslovakia. After obtaining her doctoral degree she started working as a doctor: first in Vienna, then in Bavaria near Munich – which is where she works now. The hospital where Alzbeta works sees around 400 Huntington’s disease cases each year. This year will be the Doctors’ […]
EHA Conference: Updated program
The 22-24th of September 2017 the European Huntington Association is holding a conference in Sofia, Bulgaria. It is called Stronger Together and it aims to build a bridge; a bridge between all those personally and professionally impacted by Huntington’s disease – so that we can be stronger together. We are now proud to announce our updated program! […]
What do we really want to know?
This spring German scientists wanted to find out how much people liked to know about their future. They also wanted to find out if there were any difference between future positive and negative events. With genetic testing becoming more and more available, this is a highly relevant question. Positive and negative events The same questions […]
Is everyone gone for the summer?
It is summer and all of a sudden it feels like the whole world stops for a second. It is like everything and everyone becomes quiet, looks around, drops what they got in their hands and says: “I’m going on a vacation”. Written by Maiken Arnesen Don’t get me wrong – I love the summer […]
Summer news from the HD community
Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the Huntington’s Disease (HD) community! If you are new to the European Huntington’s Disease Network, known as EHDN, it is a nonprofit research network with different aims: to advance research, facilitate clinical trials and improve clinical […]
Hidden no more
There is an old saying: «When in Rome, do as the Romans do». The 18th of May, the European Huntington Association (EHA) travelled to Rome. More accurate: to the Vatican. Watch the video below! On this beautiful day in May, six of our eight board members walked eagerly through the streets of the ancient city […]
Kim’s song – when music is therapy
Kim is 33 years old. He grew up with his mother who suffered from Huntington’s disease (HD). In 2008 he was diagnosed with the same disease. Kim struggled with depression, anxiety and a negative outlook on the future. Listen to Kim singing his touching message to his daughter below. In a period of his life […]
The admirable clinic in Germany
In early May EHA travelled to Germany to visit a clinic specialized in neuropsychiatry. The clinic sees many Huntington’s disease (HD) cases each year. It is involved in Enroll-HD and serves beds for patients with HD. They try to focus on the complexity of the patient’s needs – to see the person behind the disease. EHA was […]
From Russia to Rome – video interview
During the Audience with Pope Francis the 18th of May, the European Huntington Association met Yulia Tsvetkova in Rome. We talked about Huntington’s disease (HD), the event and the situation in Russia today. Watch the video interview below! Yulia Tsvetkova is from Russia. She currently lives in Moscow, but the day EHA met her she […]
The day Pope Francis met Huntington’s disease
The 18th of May people gathered in the Vatican. It was an event unlike any other: the largest global gathering of the Huntington’s Disease community. Twenty-six countries sat side by side: from New Zealand to Norway, from Brazil to Poland. Why? To meet one man: Pope Francis. And to tell the world that Huntington’s disease […]