Author: Maiken Arnesen

Launching of Our Voice

This autumn the EHA decided to create a new section at our website. It’s called Our Voice and it is dedicated to Huntington’s Disease stories that we carry with us. Our Voice contains video interviews with professionals and people directly affected by HD.

Living with Huntington’s Disease

In November the European Huntington Association (EHA) met two strong women in Oslo, Norway. We interviewed them to hear their side of the story: how is it really to live with Huntington’s Disease (HD)? Watch their answers in the video below.  Angela is 25 years old. She got diagnosed in the summer of 2016, but…
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Collaboration between EHA and EHDN

The 1st of December a meeting took place between EHA and EHDN. The two organizations discussed how they could extend their collaboration and work coordinated with the project Stronger Together.

The annual meeting of the LIRH Foundation

The Italian League for Research on Huntington and related diseases Foundation (LIRH Foundation) had their annual meeting in Rome 3rd of December 2016 – the same date as the International Day of People with a Disability. The meeting was open to all interested families and professionals. The meeting was given the title: HD Research borders:…
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Any questions about HD? Ask the Doctor

Do you have any questions about Huntington’s disease (HD)? Do not hesitate to ask our doctor, Alzbeta Mühlbäck, using the contact form below HD is a disease that can be quite complicated and sometimes people are left with a lot of questions:“How does it work biologically? What kind of symptoms is normal? My father is…
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The World Orphan Drug Conference in Brussels

It was 300 attendees at the World Orphan Drug Conference in Brussels from the 16th to 17th of November. Among them was the European Huntington Association’s President Astri Arnesen, the Board Members Svein Olaf Olsen and Bea De Schepper.

The EHA Board Meeting in Sofia

The European Huntington Association (EHA) board meeting took place in Sofia, Bulgaria. Here the newly elected board discussed the future of EHA. The organization are focusing on especially two projects: Stronger Together and HD on the move. Both of them are initiated by EHA and are going to happen in close collaboration with the European Huntington’s Disease Network (EHDN) and sponsors.

Newsletter from the European Huntington’s Disease Network

The European Huntington’s Disease Network (EHDN) is a nonprofit research network. EHDN forms a collaborative platform of scientists, clinicians, Huntington’s disease (HD) patients and families. The network aims to improve clinical care in HD, advance research, make clinical trials better and easier to conduct. Here is the EHDN November 2016 newsletter.   Here is the newsletter’s…
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Stronger Together: a new project launched by the European Huntington Association

Stronger Together was launched this autumn by the European Huntington Association (EHA). The project aims to get the Huntington’s disease (HD) community involved in research. To reach this aim Stronger Together wants to establish a safe network of HD affected families and researchers. The network will further function as a platform where information and experiences…
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