EHA members are organising a Workshop on March 6th.
This Webinars it’s a follow up from Amsterdam meeting in 2019, as a way to debate and work together to advocate for access to treatment and medicines for HD patients all over Europe.
Free of charge | Primarily for 18-35 years-old
Join HDYO’s Virtual Congress for young adults aged 18-35 impacted by Huntington’s Disease!
For two days, insightful talks, sharing, research updates, peer support and fun will take place online! This event is aimed primarily at young adults aged 18-35 impacted by Huntington’s Disease from families around the world. However as the event is now virtual, HDYO are welcoming family members of all ages. It’s also for professionals and pharmaceutical industry partners who work with the Huntington community.
For more information, visit: www.hdyocongress2021.com
CHDI is delighted to announce that our 16th Annual HD Therapeutics Conference will be a fully online, virtual experience to be held April 27-29, 2021. The conference program is currently being crafted and will cover all aspects of drug discovery and development for Huntington’s disease.
Sessions will include:
- HD Human Genetics: Modifiers & Mechanisms Towards Medicines
- Preclinical Stage HD Programs
- Candidate Biomarkers for Huntingtin-Lowering Programs
- Clinical Stage Interventional Programs
Please join us to learn more and make new connections in the pursuit of therapeutics for Huntington’s disease.
DEADLINES:
If you are planning to present a poster, the deadline to register and complete your virtual poster booth is APRIL 2.
If you are not planning to present a poster, the deadline to 
is APRIL 26.
Free of charge | Open to everyone | Online
Together with Annette Carlsson, we’re running a webinar on how to maintain a healthy mouth and strong teeth in people with Huntington’s disease.
During the webinar Annette will talk more about how to manage oral health and demonstrate several tools that will make oral care easier in daily life. It is free of charge and open to everyone (both professionals and family members/carers).
Background:
One of the corner stones for Quality of Life is good oral health. For people with Huntington’s there are many problems that affects the oral health. Dry mouth as well as blisters and sores can cause pain and difficulties in eating, speaking and to perform oral care. Toothache and lack of teeth affects even the mental status. Swallowing difficulties increase the risk of aspiration. It is of extra importance to maintain a good oral health and thereby minimize the risk of injurious bacteria reaching the lungs.
Speaker: Annette Carlsson
Annette is a Dental hygienist at the Mun-H-Center and Hospital dentistry in Göteborg, Sweden. She’s also the chairperson of the Swedish Huntington Association.
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WHEN: 5. May, 19:00-20:30 Central European Time
PLATFORM: Zoom
Registration will follow soon
The European Academy of Neurology (EAN) is hosting their 7th Congress in June 2021. This years theme: Towards Precision Neurology.
From Claudio L. Bassetti, EAN President:
“As the number of lives affected by the COVID-19 pandemic has now reached the millions, the health and safety of our congress attendees, our patients and our families, remains our primary concern.
While we may come from different nations, we are all experiencing difficult and trying times, and we must continue to work together to slow the spread of the disease.
With this situation in mind, the European Academy of Neurology has decided to go virtual again for the 7th EAN Congress on June 19-22, 2021, originally to be held in Vienna.
Once again, we look forward to offering you the opportunity to learn from experts in your field, grow your professional network, and discover the latest best practices in neurology, all in the comfort of your home. Building on our experience from the EAN Virtual Congress 2020, we will utilise the very best technical solutions to provide you with a virtual experience as comfortable and rewarding as the real thing.
In order to make participation affordable for colleagues all over the world, EAN is offering reduced fees for the virtual congress.
Please find detailed information on the EAN Congress Website.”
Registration is now open!
Cost per ticket depends on whether you are a EAN member or not and your membership (student, researcher, etc.).
Every second year European Huntington’s Disease Network (EHDN) hosts one of the world’s largest conferences dedicated solely to Huntington’s disease (HD). In 2021, the EHDN Plenary Meeting will take place in Bologna, Italy September 10-12.
The Plenary Meeting is open to clinicians, scientists, EHA delegates and members of families affected by Huntington’s disease (HD). You can learn more about recent advances in research and attendees have the opportunity to meet people in the field of HD studies in more informal settings.
Usually, EHDN members are entitled to have their travel and accommodation costs reimbursed up to a maximum of 400 EUR for travels within Europe and 600 EUR for travels from non-European countries. Costs above these amounts cannot be covered by the EHDN. Reimbursement forms need to be submitted after the Plenary Meeting.
Timelines
Abstract submission: May – June 2021
Registration: May – July 2021
More details will follow.