The Inherited Shame (Video!)
Thorvald Steen did not know he had an uncle with the same disease as him. In this interview, he talks about when he found out about having a genetic disease […]
VIRTUAL | New Year’s Eve Worldwide Wish to Cure Huntington’s
Jimmy Pollard is inviting you to join his virtual event: New Year’s Eve Worldwide Wish to Cure Huntington’s Disease! Make a wish or just listen to others from around the world. On New Year’s Eve, 31st of December, from 20:00 to […]
Merry Christmas!
To all of you: Merry Christmas from the European Huntington Association! This has been a strange and different year. For many of us, it has been difficult. The world we knew […]
The Inherited Shame: Coping with disease (video!)
In Part II of “The Inherited Shame”, Thorvald Steen talks about how to cope with having a genetic disease: how important it was to open up to close friends and […]
The Inherited Shame: Finding out about disease (video!)
We are proud to launch Part I in our interview series with the Norwegian author Thorvald Steen! In Part I of “The Inherited Shame”, the author talks about when he […]
Free eLearning Platform for Neurology Advocates
The newly-launched platform is developed by the European Federation of Neurological Associations (EFNA). The eLearning aim to upskill neurology advocates by developing partnerships, hosting successful online events and developing social media strategies. Everyone can enroll free of charge. […]
Adriano is walking 1000 km to raise awareness of Huntington’s Disease
Adriano Meireles is 28 years old and at risk for Huntington’s disease. To raise awareness and funds for the Portuguese association, Associação Portuguesa Dos Doentes De Huntington, he decided to […]
Are you our new Web Editor?
Our longtime web editor is leaving us for new challenges. Now we are looking for someone who has personal experience with Huntington’s disease, can fill this position and work half time […]
Moving Forward – A new project
We have just launched a project called “Moving Forward” where we aim to mobilise people at risk or presymptomatic to become more involved in Huntington research. Moving Forward was launched by […]
VIRTUAL ROUNDTABLE: Discuss how to ensure better access to care!
You are invited to discuss how to ensure better access to care, services and treatment for all patients affected by Huntington’s Disease and other Rare Neurological Diseases. Join us for […]