You are invited to our photo contest!
To all huntingtonians, You are invited to our photo contest! Send us your photo of HD and YOU! The competition is open to all Huntingtonians affected by the disease themselves or through their work. Deadline: July 31. 1) Take a photo of something related to your HD life. 2) Write an accompanying text (for instance your thoughts, […]
Huntington Research and Progress
Today is the eleventh international Rare Disease Day coordinated by EURORDIS. This year’s theme is research. With these aspects in mind, we would like to draw attention to the progress in Huntington research and patient advocacy. The patient community needs researchers and researchers need patients. As highlighted on Rare Disease Day’s website: “The patient community […]
Happy New Year
As a New Year approach people tend to reflect over the year that has been. And we in the European Huntington Association are no different. This year is characterized by many things. If we look outside our own little community, the world “ may seem an unfriendly and sinister place” to quote Lemony Snicket. However […]
HD on the Bike
In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to do it in a positive and fun way. We therefore invite all of you to join us in a biking race. We will participate as Huntingtonians United under the slogan HD on the Bike. And […]
Summary of the Conference Stronger Together
In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – and even from Oman. The crowd consisted of old people, young people, extroverts, introverts, boys, girls and everything in between. But they all had one thing in common: Huntington’s disease. The 250 huntingtonians had a […]
EHA Conference: Updated program
The 22-24th of September 2017 the European Huntington Association is holding a conference in Sofia, Bulgaria. It is called Stronger Together and it aims to build a bridge; a bridge between all those personally and professionally impacted by Huntington’s disease – so that we can be stronger together. We are now proud to announce our updated program! […]
Hidden no more
There is an old saying: «When in Rome, do as the Romans do». The 18th of May, the European Huntington Association (EHA) travelled to Rome. More accurate: to the Vatican. Watch the video below! On this beautiful day in May, six of our eight board members walked eagerly through the streets of the ancient city […]
The day Pope Francis met Huntington’s disease
The 18th of May people gathered in the Vatican. It was an event unlike any other: the largest global gathering of the Huntington’s Disease community. Twenty-six countries sat side by side: from New Zealand to Norway, from Brazil to Poland. Why? To meet one man: Pope Francis. And to tell the world that Huntington’s disease […]
Find the program here!
The 22-24th of September 2017 the European Huntington Association (EHA) is holding a conference in Bulgaria. Around 250 will join us in Sofia – and we look forward to it! You can find the program here: Program for Sofia Conference: Stronger Together During our conference you will get the opportunity to meet representatives from the pharma […]
Conference in North Staffordshire
This year a Huntington’s Disease conference will once again be held in North Staffordshire, Stoke on Trent. Among many brilliant speakers, our own board member Dina de Sousa, will speak at the conference. Do you want to participate? Register here. Here’s a description of the event: Families and care providers continue to face the challenges of […]