Prilenia news 2024

Breaking News Prilenia will ask for market approval at the EMA Today, Prilenia made a groundbreaking announcement, revealing that they are going to apply for market authorization at the European Medicines Agency (EMA) within the next few months. This marks a historic moment as the first-ever medicine for Huntington’s Disease (HD) reaches this critical stage. […]

Belgium 2023

EHA CONFERENCE IN BELGIUM 2023 The EHA Conference 2023 “Knowledge, Empathy and Empowerment” took place in Blankenberge (Belgium), from October 19th to 22nd. This was a great opportunity to connect with the HD global community, learn about HD care and treatment and how to cope with living with HD.  The conference was open to everyone […]

one week left

EHA CONFERENCE 2023 IN BELGIUM 19th – 22nd in Blankenberge One week left for the Conference! We are excited to start this new adventure in Blankenberge, and we want to ensure that you have everything you need for the conference. Here, you can find all the information on how to reach the conference location, what […]

Kongres in Zvolen Slovak Association

Huntington´s disease Days Congress An international conference titled Huntington´s disease Days took part in Zvolen, Slovakia, on 26 and 27th May 2023. This in-person conference was organized by Agel Hospital Zvolen, Parkinsonism and Movement Disorders Treatment Center in Zvolen, and Slovak patient organization Spoločnosť pre pomoc pri Huntingtonovej chorobe. It was dedicated for various medical […]

Takeover days

MAY AWARENESS MONTH 2023 KNOWING OUR GLOBAL HD COMMUNITY During the month of May, the European Huntington Association and the International Huntington Association started the social media takeover days! A safe space for the HD community to raise their voices about important topics, such as participating in HD initiatives, some coping strategies, and their own […]

Photo contest

May Awareness Month Photo contest Join our Stronger Together Photography Contest! You can win a free registration for the EHA Conference 2023 in Belgium. The European Huntington Association and the International Huntington Association organized a photo contest during May Awareness Month 2023 for a new and creative chance to raise awareness for Huntington’s Disease (HD). […]

Prilenia announce results from the PROOF-HD study

Prilenia announce results from the PROOF-HD study: Promising, but mixed results! Today, April 25th, Prilenia announced results from the PROOF-HD clinical trial for Huntington’s Disease. Some of the participants showed significant benefits from the Pridopidine drug, while others did not benefit at all.  This is promising because for the first time we have a drug that […]

ConferenceRegistration2023

Here you can register to the EHA Conference. First, select your attendee group. HD Family Member If you are a family member you can use this registration form Click Here Professional If you are a professional you can use this registration form Click Here Youth If you are younger than 30, you can use this […]

HDYO Congress

HDYO CONGRESS IN GLASGOW HDYO 2023 Congress took place in Glasgow (Scotland), from March 17th to 19th. This was the first opportunity to meet the international community of young people, families and professionals impacted by Huntington’s disease. The European Huntington Association has been actively involved during the HDYO Congress, trying to capture the best moments […]

Novartis ends the VIBRANT-HD study and will not continue the program with Branaplam

Novartis ends the VIBRANT-HD study and will not continue the program with Branaplam Still the study brings us some very good news as the drug did reduce the levels of mutant (sick) huntingtin in the spinal fluid collected from the participants.  This is groundbreaking achievement as the drug is administered orally (through the mouth). Nevertheless, reducing […]