SOMBIOTECH sharing very positive trial results!
SOM BIOTECH sharing very positive trial results! SOM Biotech shared on February 6th a press release where you announced very positive results from the Phase 2 trial that was finished last year. In this trial the drug named SOM3355 in 140 patients. This drug has been used for other diseases for several decades and SOM […]
Rare Disease Day 2025 Campaign
Rare Disease Day 2025 Campaign The European Huntington Association, together with the International Huntington Association, is organizing a special campaign for Rare Disease Day 2025 on February 28th! This year’s slogan is “More than you can imagine”, and we want to showcase that people in the HD community are so much more than the disease. […]
What are Health Technology Assessments and why do they matter? Understanding the path to access to therapies
What are Health Technology Assessments and why do they matter? Understanding the path to access to therapies Health technologies include medications, devices, and systems designed to address health problems, improve health outcomes, and enhance the quality of care. For Huntington’s Disease (HD), health technologies include potential therapies that, if developed, could profoundly impact patients’ lives. […]
EHA Conference 2025 Romania
EHA CONFERENCE IN ROMANIA 2025 We are excited to announce that the European Huntington Association will be organising its 5th Biannual Conference in Bucharest, Romania, from September 25th-28th, 2025. “Shaping our Future Together, We are the Change!” encapsulates the spirit of this year’s conference, uniting the HD community to exchange experiences, explore care and treatment […]
Success of the Book “Chronicle of a Fortune Foretold”: Over 270 Copies Sold in 2024
Success of the Book “Chronicle of a Fortune Foretold”: Over 270 Copies Sold in 2024 The solidarity project led by the European Huntington Association (EHA) through its Moving Forward initiative, in collaboration with the Spanish Huntington’s Disease Association (ACHE), has closed 2024 with outstanding results. With over 270 copies sold, “Chronicle of a Fortune […]
Join the European Huntington Association’s Teaming Initiative
Join the European Huntington Association’s Teaming Initiative A small donation with big impact What is Teaming? Teaming is an online crowdfunding platform that enables people to support meaningful causes with just 1€ per month. By collecting small contributions from a large number of people, Teaming creates a powerful collective impact that can drive significant change. For […]
Presidents Report
Presidents Report EHA 2023 Together – forwards and upwards! Click here to read our President Report
🟢 NEW WEBINAR VIDEO AVAILABLE: Research Insights: Latest Updates on Ongoing Studies
Webinar: Research Insights: Latest Updates on Ongoing Studies A summary of the latest webinar and Q&A session On October 23rd, the European Huntington Association held an engaging and informative webinar titled “Research Insights: Latest Updates on Ongoing Studies.” The session was expertly moderated by Professor Åsa Petersén, an HD clinician and researcher, and included participation […]
We better get moving! The significance of physical activity for HD patients and the role of physiotherapy
We better get moving! The significance of physical activity for HD patients and the role of physiotherapy While the scientific community keeps working to develop pharmacological treatments, it is important that we focus on improving quality of life and adopting habits that are beneficial for our health. Physical activity is one of those habits that […]
PTC announced promising 12 month results from their Phase 2 PIVOT-HD study of oral PTC518
Breaking News PTC today announced promising 12 month results from their Phase 2 PIVOT-HD study of oral PTC518 PTC today announced promising 12 month results from their Phase 2 PIVOT-HD study of oral PTC518. At Month 12, mutant Huntingtin (mHTT) in the blood was lowered by 22% and 43% respectively for 5mg and 10mg doses. A similar result was seen in cerebrospinal fluid, where mHTT was […]