A promising future for Malta

The circumstances for people affected by Huntington’s in Malta are poor. However, the situation might change. This October EHAs Vice President Barbara D’Alessio and LIRHs Founding Director Ferdinando Squitieri are travelling to the small country to meet HD affected families. With a population of just 420 000 Malta is one of the smallest and most densely […]

Summary of the Conference Stronger Together

In September around 250 people gathered in Sofia, Bulgaria. They came from 25 different countries from all over Europe – and even from Oman. The crowd consisted of old people, young people, extroverts, introverts, boys, girls and everything in between. But they all had one thing in common: Huntington’s disease. The 250 huntingtonians had a […]

A new coalition to give families a impactful voice

The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the Huntington’s Disease Coalition for Patient Engagement (HD-COPE), a new global coalition to give families who are affected by Huntington disease (HD) a direct and impactful voice in HD clinical research. […]

Genetic testing and its implications

Alzbeta Mühlbäck was born in the Slovak Republic, former Czechoslovakia. After obtaining her doctoral degree she started working as a doctor: first in Vienna, then in Bavaria near Munich – which is where she works now. The hospital where Alzbeta works sees around 400 Huntington’s disease cases each year. This year will be the Doctors’ […]

What do we really want to know?

This spring German scientists wanted to find out how much people liked to know about their future. They also wanted to find out if there were any difference between future positive and negative events. With genetic testing becoming more and more available, this is a highly relevant question. Positive and negative events The same questions […]

Summer news from the HD community

Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the Huntington’s Disease (HD) community!  If you are new to the European Huntington’s Disease Network, known as EHDN, it is a nonprofit research network with different aims: to advance research, facilitate clinical trials and improve clinical […]

Milano taking HD needs into universal design

On June 29th the the HD Associations AICH Milano and Huntington Onlus opened a very exciting and innovative Exhibition at the famous art Exhibition venue Triennale Design Museum in Milano.  “Second Name: Huntington” contributes to shedding light on this rare disease for which there is still no cure. The exhibition is the last of a series of […]

Hidden no more

There is an old saying: «When in Rome, do as the Romans do». The 18th of May, the European Huntington Association (EHA) travelled to Rome. More accurate: to the Vatican. Watch the video below! On this beautiful day in May, six of our eight board members walked eagerly through the streets of the ancient city […]

Kim’s song – when music is therapy

Kim is 33 years old. He grew up with his mother who suffered from Huntington’s disease (HD). In 2008 he was diagnosed with the same disease. Kim struggled with depression, anxiety and a negative outlook on the future. Listen to Kim singing his touching message to his daughter below.  In a period of his life […]

The admirable clinic in Germany

In early May EHA travelled to Germany to visit a clinic specialized in neuropsychiatry. The clinic sees many Huntington’s disease (HD) cases each year. It is involved in Enroll-HD and serves beds for patients with HD. They try to focus on the complexity of the patient’s needs – to see the person behind the disease.  EHA was […]