Are you our new Web Editor?
Our longtime web editor is leaving us for new challenges. Now we are looking for someone who has personal experience with Huntington’s disease, can fill this position and work half time […]
Moving Forward – A new project
We have just launched a project called “Moving Forward” where we aim to mobilise people at risk or presymptomatic to become more involved in Huntington research. Moving Forward was launched by […]
Latest Huntington’s disease news!
The EHDN Newsletter is here! The 39th edition is dedicated to ethics in Huntington’s disease. Find it here. The European Huntington’s Disease (EHDN) newsletter aims to communicate the network’s activities and other developments […]
New documentary “Absolute Beginners” – watch it now!
Absolute Beginners portrait six gene positive people and their reflections on the onset of Huntington’s disease. Watch it now! Absolute Beginners is a creative documentary presented by the French Huntington association Dingdingdong […]
“RARE/D”: A NEW RARE DISEASE PODCAST
RARE/D is a new podcast series that started on December 29. On the podcast, topics such as genome editing and health care are being discussed by a multidisciplinary team. The […]
New project: e-health for Huntington’s patients and families
In order to ensure good care for Huntington patients and their families, the HEALTHE-RND project aims at developing an e-health platform. The platform will ensure access to help and information […]
Race for awareness – video!
[vc_row][vc_column][vc_column_text]18th of August the cycling race Géants Des Ardennes took place in Liège, Belgium. With the help of team leader Jeroen de Schepper, the European Huntington Association participated with their own team: […]
Learn more about patient advocacy and how to influence!
Are you between 18 to 35, living in Europe and affected by a neurological disorder? Then you can participate in EFNA’s workshop! Register before September 21st. Register here. The European Federation […]
HD on the Bike
In the summer of 2018 the European Huntington Association wants to create awareness around Huntington’s disease. And we want to do it in a positive and fun way. We therefore […]
A new coalition to give families a impactful voice
The European Huntington Association (EHA), Huntington’s Disease Society of America (HDSA) and Huntington Society of Canada (HSC) are proud to announce the formation of the Huntington’s Disease Coalition for Patient […]