Research news from EHDN
Read about the Fellowship Programme, get an update on clinical trials, get to know Ed Wild better and get dates for your diary. Use the arrows in the lower left corner to flip the page [pdf-embedder url=”https://eurohuntington.org/wp-content/uploads/2018/03/EHDN-News-March2018.pdf”]
More positive data from the Ionis/Roche trial released today
Today Ionis and Roche have announced more details from the Huntingtin lowering trial. The initial results was released in December last year and today at the CHDI conference in Palm Springs, more details from the trial results was presented. The drug formely called IONIS-HTTRx will from now on be named RG6042. The drug was given […]
Meeting with Roche
When the groundbreaking results of the Huntingtin lowering trial, IONIS-HTTRx, was announced the European Huntington Association travelled to Basel to meet Roche Pharmaceuticals. Roche have taken over the trial and is now planning the next step. Roche have put together their own team of around 20 people that are working on the Huntingtin lowering trial. […]
Christmas card from Roche
This December IONIS Pharmaceuticals announced their groundbreaking results from the first Huntingtin lowering trial in humans (called IONIS-HTTRx). At the same time it was announced that Roche was going to take over the trial. Here is a message from their team: Dear members of the Huntington’s Community, We are delighted that IONIS-HTTRx is entering the […]
Groundbreaking results!
This date will probably go into history along with the discovery of the Huntington gene in 1993. Today IONIS Pharmaceuticals announced the results from the first Huntingtin lowering trial in humans. The result exceeds all expectations. “I almost cried when I got the results,” Astri Arnesen the President of EHA, states. Best Christimas Gift ever […]
Is everyone gone for the summer?
It is summer and all of a sudden it feels like the whole world stops for a second. It is like everything and everyone becomes quiet, looks around, drops what they got in their hands and says: “I’m going on a vacation”. Written by Maiken Arnesen Don’t get me wrong – I love the summer […]
Summer news from the HD community
Three times a year the EHDN newsletter appears. Now you can read the summer edition; with latest news from the Huntington’s Disease (HD) community! If you are new to the European Huntington’s Disease Network, known as EHDN, it is a nonprofit research network with different aims: to advance research, facilitate clinical trials and improve clinical […]
Spring News from the research community
Three times a year the EHDN newsletter appears. Now you can read the Spring edition – with latest news from the Huntington’s Disease (HD) research community. From page 8-10 you will find a interview with our own President, Astri Arnesen. If you are new to the European Huntington’s Disease Network, known as EHDN, here’s a […]
Updates from an exciting conference!
24th of April marked the opening of the 12th CHDI conference in Malta. 27th marked the end. What have we learned? HDBuzz has made a day-by-day summary of the conference. You can find it below or go to their website. The aim of the CHDI conference was to learn and discuss where to go from the place we are […]
What is this new Huntington’s disease drug?
A scientific paper declared a while ago positive results for a trial of the drug deutetrabenazine in Huntington’s disease. The trial studied a new way of treating uncontrollable movements in HD. Now the drug is approved for treatment in the US and is launched as Austedo. Confusing stuff! Read more: New HD drug approved What’s chorea? […]