Enroll-HD Monthly News Bulletin – June 2016

June 2016 Monthly News Bulletin Latest Enroll-HD data release The second Enroll-HD periodic dataset that includes the clinical data from 4146 participants is now available on the Enroll-HD website to any researcher employed at a recognized research institution or company. You can learn more about the types of data and biosamples that are available and […]

10,000 now signed up to Enroll-HD!

On April 8 2016, Enroll-HD reached a milestone as the 10,000th person signed up to be part of the study. That person joined 9,999 others in the worldwide collaborative effort to understand more about HD and provide an infrastructure for more and better research and provide an infrastructure for more and better research, including clinical […]

Huntington’s Drug That Silences Gene at Root of Disease Now in Phase 1 Clinical Test:

Timea Polgar has reported on Huntingtonsdiseasenews.com how a drug targeting the cause of Huntington’s disease (HD) was found effective and safe in animal tests, and clinical studies in humans are beginning, according to newly released data that will be presented at the American Academy of Neurology‘s 68th Annual Meeting in Vancouver, Canada, on April 15–21, 2016. […]

Looking Past the Spin: Results from a Clinical Trial of Cysteamine

In early December, Raptor Pharmaceuticals released clinical trial results evaluating a drug called cysteamine in Huntington’s disease. News headlines about this trial are heavy on media spin, and so HDBuzz is here to break down what these new results really mean for the Huntington’s community. Clinical Trials and Pomegranates? Though it might not be obvious […]