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    • Our EHA Board
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DAY 1

  • Phylis Kitema at the European Huntington Association board meeting.
  • Left to right: Astri Arnesen, Phylis Kitema, Filipa Julio. European Huntington Association board meeting.
  • Dina de Sousa at the European Huntington Association board meeting.
  • European Huntington Association board meeting.
  • European Huntington Association board meeting.
  • Left to right: Phylis Kitema, Filipa Julio, Bea de Schepper.
  • Song rehearsal led by Paul de Sousa for Olivia Sawano's Huntington song "North Star - HD 8890"
  • Left to right: Svein Olaf Olsen and Astri Arnesen.
  • Meeting with Romanian attendees.
  • Ramona Moldovan, welcoming on behalf of the Romanian Huntington Association.
  • Attendees from Romania.
  • Ã…se Arnesen welcoming conference attendees at the registration desk.
  • Ã…se Arnesen welcoming conference attendees at the registration desk.
  • Bea de Schepper giving a warm welcoming hug.
  • Left to right: Bea de Schepper, Phylis Kitema, Mette Børresen.
  • Registration.
  • Meeting with the European Huntington Association board and European HD-COPE members.
  • Left to right: Rob Haselberg, Cristina Ferreira, Andrea Ilari (HD-COPE members)
  • Left to right: Zainab Umakhanova, Steve Duckett, Rob Haselberg (HD-COPE members).
  • Left to right: Danuta Lis (EHA board), Bea de Schepper (EHA board), Anne Lennon Bird (HD-COPE member).
  • Song rehearsal for Olivia Sawano's Huntington song "North Star - HD 8890"
  • Left to right: Bea de Schepper (EHA board), Zainab Umakhanova (HD-COPE member).
  • Left to right: Alice Rivieres (HD-COPE member), Astri Arnesen (EHA board).
  • The European Huntington Association board together with European HD-COPE members.
  • Left to right: Dina de Sousa, Ramona Moldovan and Astri Arnesen getting ready for the opening meeting.
  • Opening by Astri Arnesen and Ramona Moldovan.
  • Mette Børresen photographed with a picture of Yulia Tscetkova and her mom.
  • 220 attended the European Huntington Association conference 2019.
  • 220 attended the European Huntington Association conference 2019.
  • The EHA board, together with lead singer Paul de Sousa, perform "North Star - HD 8890"
  • The EHA board, together with lead singer Paul de Sousa, perform "North Star - HD 8890"
  • Left to right: Alzbeta Muhlbäck and Katrin Barth.
  • Coffee break.
  • Authentic Romanian coffee.
  • Left to right: Monica Busse and Katrin Barth.
  • Left to right: Monica Busse and Katrin Barth.
  • Marco Salvadori.
  • Olca Engin-Sarialtin.
  • Olca Engin-Sarialtin.
  • Anne Lennon Bird speaking about caring for a partner with Huntington's disease.
  • Anne Lennon Bird speaking about caring for a partner with Huntington's disease.
  • Anne Lennon Bird speaking about caring for a partner with Huntington's disease.
  • Alexandra Cachia and Fiona Cachia talking about how to take care of yourself.
  • Left to right: Anne Lennon Bird, Svein Olaf Olsen and Astri Arnesen.
  • Alexandra Cachia and Fiona Cachia talking about how to take care of yourself.
  • Dina de Sousa speaking about contributing in research.
  • Rudy Vera.
  • Left to right: Svein Olaf Olsen, Astri Arnesen, Paul de Sousa and Johan Oreel. De Sousa and Oreel shared their own experiences from speaking about Huntington's in the family.
  • De Sousa and Oreel shared their own experiences from speaking about Huntington's in the family.
  • Phylis Kitema.
  • Left to right: Astri Arnesen, Naim, Svein Olaf Olsen and Olca Engin-Sarialtin. Meeting about establishing a Huntington association in Turkey.
  • Astri Arnesen and Naim.
  • Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen and Naim
  • Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen.
  • Left to right: Olca Engin-Sarialtin, Astri Arnesen, Svein Olaf Olsen.
  • Information desk officer.
  • Matty Ellison representing HDYO.
  • Matty Ellison representing HDYO.
  • Svein Olaf Olsen impressing his audience.
  • Attendees and photographer (middle) from Romania.
  • The alphabet of challenges.
  • Left to right: Bea de Schepper and Olca Engin-Sarialtin.
  • Olca Engin-Sarialtin.
  • Left to right: Svein Olaf Olsen and Alzbeta Muhlbäck.
  • Attendees from Italy. Marco Salvador in the middle and Barbara D'Alessio to the right (Vice President, EHA).

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  • Home
  • About
    • Our EHA Board
    • Our Members
    • Our Partners
    • About us
      • History
      • Stronger Together
      • Presidents Report 2023
      • 2021 | General Assembly minutes
      • Constitution
      • Policy Towards Pharma
      • Funding Sources 2023
      • 2023 | EMA eligible organisation
    • Huntington’s Disease
    • Huntington Community
  • News
  • Our Projects
    • Moving Forward
    • HD Trial Finder
    • HD – CAB
    • Healthe-rnd
  • Online Resources
  • Videos
    • Webinars
    • Personal Stories
    • Trials & Research
  • 2025 Conference | Romania
  • Events
    • 2023 | Belgium
    • 2023 | Glasgow
    • 2022 | Bologna
    • 2019 | Bucharest
    • 2018 | Vienna
    • 2017 | Sofia
  • Contact Us
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