When:
14th May 2020 all-day
2020-05-14T00:00:00+01:00
2020-05-15T00:00:00+01:00
Where:
Stockholm, Sweden
Contact:
EURODIS
UPDATE! Due to the Corona virus, the membership meeting will be held as a web meeting.
May 14, the EURODIS membership meeting and seminar for patient advocates in European Reference Networks, will take place in Stockholm, Sweden.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 884 rare disease patient organisations in 72 countries.
European Reference Networks for rare diseases create a clear governance structure for knowledge sharing and care coordination across the EU. They are networks of centres of expertise, healthcare providers and laboratories that are organised across borders.
Contact Martina Bergna for more information about the event: martina.bergna@eurordis.org