29 February 2020 will be the thirteenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
Find events near you! | Get involved!
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. In 2020, 90 events in 103 countries will take place during the day.
This year’s poster features Gauthier and his mum. Gauthier is living with sickle cell anaemia, a specific form of haemoglobin disease. Read his story here.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 884 rare disease patient organisations in 72 countries.