Funding Sources

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Sponsor | % of overall organisation’s income

Industry related income (31,6 %)


Wave Life Sciences | 18,3%

Uniqure | 11,1%

Roche Pharma Holding B.V. | 1,4%

Novartis | 0,9%

 

Non-Industry related income (68,4 %)


Huntington Liga | 26,7%

Huntington’s Disease Society of America | 13,1%

University hospital Ulm| 9,3%

Boston Scientific Foundation Europe | 7,7%

Asociación Corea| 4,6%

Orphan people | 4,6%

EFNA | 2,3%

Comments:

Huntington Liga is a non-profit patient association for Huntington in Flanders, Belgium. They
have supported EHA in providing several online services and content on our webpages.

Huntington’s Disease Society of America is a non-profit association for HD in US. They have
been coordinating HD-COPE and the donation represent overhead from the advisory boards
provided by HD-COPE.

University hospital Ulm host the coordination of the European HD Network. They have supported EHA in setting up a web resource for the project HEALTHE-RND.
Boston Scientific Foundation Europe is a non-profit Foundation based in the US. They support
patient groups and have supported EHA in setting up the HD trialfinder webpage.

Asociación Corea Huntington Espana (ACHE) is a on-profit patient organization for HD based in
Madrid, Spain. They have supported EHA in providing the HD trialfinder in Spanish.

Orphan People is a non-profit patient organization for Rare Diseases. Based in Moscow, Russia. They have supported EHA in providing the HD trialfinder in Russian.

EFNA is a non-profit umbrella organization for Neurological Associations. Based in Brussels, Belgium.
They have supported EHA in providing the webpage www.healthernd.eu