UK regulators positive to evaluate Huntington treatment
Community Update UK regulators positive to evaluate Huntington treatment! UniQure announced today that the company has presented the data from the AMT-130 therapy to the regulators in the UK (MHRA). Some […]
Understanding what happens inside the brain in Huntington’s Disease
Understanding what happens inside the brain in Huntington’s Disease Huntington’s Disease (HD) is a complex neurological condition that evolves over time, affecting movement, cognition, and behaviour. As many of the […]
2026 May Awareness: More Than HD – Be Part of It
More Than HD – Be Part of It A global awareness and engagement campaign for Huntington’s Disease “More Than HD – Be Part of It” The European Huntington Association (EHA) […]
Novartis Community Update
Community Update Novartis shares important progress on Huntington’s Disease Research We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s […]
Breaking the Silence: Árni Gautur Arason opens up about living Huntington’s Disease
Breaking the Silence: Árni Gautur Arason opens up about having HD Speaking up about living with HD is never easy and it takes courage to do so. Árni Gautur Arason, […]
Why psychological support matters in Huntington’s disease
Why psychological support matters in Huntington’s Disease The importance of mental health is increasingly recognized, and investing in therapy has become a common and necessary practice. For individuals living with […]
IDEA-FAST Patient Survey
IDEA-FAST Patient Survey Fatigue and having trouble sleeping are some of the hardest symptoms for people with long-term health conditions. These symptoms are common, but they are still difficult to […]
uniQure Provides Regulatory Update on AMT-130 for HD
Community Update uniQure Provides Regulatory Update on AMT-130 for Huntington’s Disease UniQure announced today that the US authorities (FDA) require the company to collect more data before they can ask […]
Understanding Communication Skills in HD Care
Understanding Communication Skills in HD Care Communication with someone affected by Huntington’s Disease can be deeply meaningful and deeply challenging. While we often hear that “communication is key,” in the […]
Harness Therapeutics Nominates HRN001 Drug Candidate for HD and Launches clinical Advisory Board
Community Update Harness Therapeutics Nominates HRN001 Drug Candidate for HD and Launches Clinical Advisory Board HRN001 is an experimental treatment being developed by Harness Therapeutics for people with Huntington’s disease. Most experimental treatments […]