OUR PROJECTS – European Huntington Association

Here is a list of the projects that the European Huntington Association is currently involved with:

MOVING FORWARD

This project wants to hear and engage those traditionally less involved in research – persons at risk for HD and persons with premanifest HD. We believe that these groups have different needs, worries and wishes regarding research participation compared to people in more advanced HD stages.

HD TRIAL FINDER

HDTrialFinder is the first and only European platform where all Huntington’s disease trials and studies are presented in plain language. We have developed this webpage to enable you to get more information about clinical trials and make it easier to participate.

HD CAB

The main mission of this initiative is to represent the voice of the global HD community and provide HD community experience to regulators, industry, researchers and governing bodies. HD-CAB is an instrument to facilitate patient-oriented research and clinical trials as well as fair processes to make treatment accessible for all patients.

HD CAB

HealthE-RND is a 3-year pilot project carried out in six European countries: Czech Republic, Germany, Italy, Ireland, the Netherlands and UK. Our overarching aim is to improve quality of life amongst those of us affected by rare diseases by offering an online eHealth platform. In the initial phase of the project we are focusing on HD families and patients

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